Welcome all my friends and family. To get started, go up to the top right corner and click on sign in.  There you can create a new user name and password so that you can join in on disscussions and respond to news.  I hope you enjoy my site, lots of love, Connor :)

Welcome to Connor's Page. It has been provided to keep people who love him updated about our little one.

 Hi, I am Connor John Schriever. I was born on October 18th, 2004, in Liberty, MO. My mom, dad, and I are living here in an apartment above grandpa and grandma Schriever's house, so my mommy can stay home while daddy works hard in Law school. When I get bigger I will take over the site, but for now my mom and dad will fill it out.

I have Cystic Fibrosis (CF) There is more information below or check out the link. We found out when I was three months old. It was very sad news when we heard what it was, but my parents are strong and love me, and will do whatever it takes to help me with it and keep me as healthy as they can. I get breathing treatments daily, as well as my Vest. I also take extra vitamins because I have trouble absorbing them, and I take Zantac to help control my stomach acids so my enzymes that I take before each meal will work better. My mom says that if we do all this every day, I will feel better and be heathier longer. I love both my parents for being so strong and taking care of me! I am so glad my mom gets to stay home and play with me, but still am very grateful for my dad who is working hard in school, so he can take care of the family and the cost of having a child with CF. I love them both so much, and the rest of my wonderful family, Grandparents, Great-Grandparents, Aunts, Uncles, cousins, Great-Aunts and Uncles, extended Cousins??? And friends!!! I love you, and hope the best for you! I miss you all and can't wait to see you again! I hope you all enjoy the site, since we live so far away, we can stay close through pictures, video clips, and news about me!

What is Cystic Fibrosis?

Cystic fibrosis (CF) is a genetic disease affecting approximately 30,000 children and adults in the United States. A defective gene causes the body to produce an abnormally thick, sticky mucus that clogs the lungs and leads to life-threatening lung infections. These thick secretions also obstruct the pancreas, preventing digestive enzymes from reaching the intestines to help break down and absorb food.

People with CF have a variety of symptoms including: very salty-tasting skin; persistent coughing, at times with phlegm; wheezing or shortness of breath; an excessive appetite but poor weight gain; and greasy, bulky stools. Symptoms vary from person to person due, in part, to the more than 1,000 mutations of the CF gene.

The treatment of CF depends upon the stage of the disease and the organs involved. Clearing mucus from the lungs is an important part of the daily CF treatment regimen. Chest physical therapy is a form of airway clearance done by vigorous clapping on the back and chest to dislodge the thick mucus from the lungs. Other types of treatments include TOBI® (tobramycin solution for inhalation), an aerosolized antibiotic used to treat lung infections; Pulmozyme®, a mucus-thinning drug shown to reduce the number of lung infections and improve lung function; and azithromycin, an antibiotic recently proven to be effective in people with CF whose lungs are chronically infected with the common Pseudomonas aeruginosa bacteria.

According to the CF Foundation's National Patient Registry, the median age of survival for a person with CF is in the mid 30s. As more advances have been made in the treatment of CF, the number of adults with CF has steadily grown. Today, nearly 40 percent of the CF population is age 18 and older. Adults, however, may experience additional health challenges including CF-related diabetes and osteoporosis. CF also can cause reproductive problems - more than 95 percent of men with CF are sterile. But, with new technologies, some are becoming fathers. Although many women with CF are able to conceive, limited lung function and other health factors may make it difficult to carry a child to term.

More than 10 million Americans are unknowing, symptomless carriers of the defective CF gene. An individual must inherit two defective CF genes -- one from each parent -- to have CF. Each time two carriers conceive, there is a 25 percent chance that their child will have CF; a 50 percent chance that the child will be a carrier of the CF gene; and a 25 percent chance that the child will be a non-carrier.

For more information go to www.cff.org